Doctor update!!
Today Emma saw her team of doctors with the white matter clinic:
They are so impressed with how well she is progressing, they are on board with her mushrooms and acupuncture. She’s gaining weight perfectly so no talk of a g tube. Her labs, both blood and urine ALL came back great!!! We’ve graduated to every 6 months appointments instead of every 3. Hip X-rays looked great as well! She’s gotten so big she can no longer sit on my lap during blood draws and has to now sit in between my legs😭😭
Best part of the day you ask?!?? EMMA SAID ”MA” IN THE CAR ON THE WAY TO THR HOSPITAL!!!! She has since said it THREE more times!!
In the last 24hrs, she has mastered blowing raspberries too and cannot stop 😂😂😂😂This past week she’s starting to make “G” and “B” sounds as well!!!
Also: Emma’s on a renal diet bascially, low sodium and low protein (animal protein) to keep her kidneys functioning well. I talked with her dietitian and asked if she could have plant protein instead since it’s not as hard to process as animal protein. Not only can she have plant protein, but she’s not on a limit of it!!!!
